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Dizzy Al A

Posted By: jonathan on November 26, 2007 @ 2:18 pm
Filed under: dialysis

Does anyone remember this character from the Fox Kid’s Club here in Denver?
Many of us started off our afternoons to his memorable voice - does anyone else remember?

Keep the memory alive.


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And here we are…

Posted By: jonathan on September 27, 2007 @ 9:40 pm
Filed under: dialysis

After all this time - you’re still still sitting there reading what I have to say?!
Amazing…. I love the Inter-webs.

So… After much deliberation and heartache, my life has taken about 42 amazing and thrilling turns since we last saw each other.

I am no longer working at BrightStores - which some of you are probably saying “bright huh?”.

Ok… lemme backup.
About a year ago I left Chris Finger Pianos to try my hand at professional web development. I took a job with a small company called “BrightStores” under the pretense that I would be working from home. This was a great move at first, what with my busy dialysis schedule and all. After several months though the owner of the company began looking for office space, yearning for the cohesion that comes from everyone sitting around checking sports scores and instant messaging their friends in the same building. He decided ultimately to get office space in Evergreen after telling me several times “Don’t worry - I’m never going to require you to be in an office 5 days a week.” Of course after about a week in the new office he decided that he did in fact want me there full time. Furthermore, if I was unable to be there full time, I should consider going either contract, or part time (this of course made sense given the number of hours I would miss due to treatment). I actually moved my schedule all around to try and make it work for a couple of weeks, but in the end decided I should go contract. Keep in mind, I made this decision thinking that my job would stay much the same it was, but that I would now have the freedom to work from home again not being a full time employee.
Nope…
I think I racked up between 5 and 7 billable hours of work after going contract.
Anyway - needless to say, I had to think quick and find some other way to make ends meet.
We’re still in that phase I guess, but a few exciting things have happened. I will try to enumerate upon these things in the coming days.

1) Anna and I began (and completed) training to do home-hemodialysis, allowing us to now schedule dialysis around our lives, rather than the other way around. We absolutely love it, and I am much healthier for it - not to mention I get to spend more time at home with the wife, cat, and puppy.

2) My friends over at the iO Group were kind enough to take me on as a contract employee there, helping me to fill in some empty hours with web development work. This was truly a God send, and I’m hoping it will continue to blossom and grow as a source of work for me.

3) I have started my own business venture. I have been a piano technician for more than 12 years now, and very much enjoy some aspects of my work. I have for a long time been wondering how else I can, with my current skill set, find meaningful work - how can I make a difference? After much deliberation I have decided to begin teaching piano. First off, it puts me at the piano which is where I want to be, and second it allows me to become a better student myself. I’ve begun practicing again, and am starting to crank through some new music which is fun.
I’m also toying with the idea of doing some recording and seeing if anyone might like to listen to my “music”.

Anyway - time for me to go to bed after finishing up yet another daily dialysis treatment - but things are wonderful and I am content.


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At Long Last

Posted By: jonathan on May 16, 2007 @ 6:22 pm
Filed under: dialysis

The time has come to pick up this dusty old cap, give it a good whack against my leg, and begin wearing it again.
After being ravaged by spam, this place is overdue for an overhaul, and it begins now.

Soon going to tollidee.com will simply bring you here, and this will become the meat of the operation.
I’m done trying to inspire dialysis patients with my trials and tribulations - rather, I will begin writing whatever I feel like writing. Some of it (much of it I’m sure) will be dialysis related, but much of it will also be related to whatever flotsam is wedged into the conduits of my brain.
I hope to jettison much onto you willing participants.

… Until then …


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Homecoming

Posted By: jonathan on November 1, 2006 @ 5:37 pm
Filed under: dialysis

Well all,
It’s been awhile since I’ve posted — BUT — I have good reason (so don’t get angry).

I recently started a new job as a web designer, and find that I don’t spend a lot of time with the upkeep of this site now. My intentions are pure I assure you, but I’ve just not had time with the new job to come “over here” and take care of things.

My apologies, as I know this has been apparent in the forums, and on the blog - with the complete lack of any fresh content.

As always, after a long hiatus, I will return with several fast posts in a blitzkrieg of literary mediocrity.

Yes, I’m enjoying the new job immensely, and even get to work from home - which turns out to be a huge plus for the dialysis patient.


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Better Days

Posted By: jonathan on September 22, 2006 @ 5:00 pm
Filed under: dialysis

I’m watching an elderly gentleman right now try to pull his chest catheter out, and I am sorry he is here.
I’m trying to decide if he’s pulling to get off of the machine, or if he realizes that a hard enough tug will end all of this.

I don’t know this man’s story, but he showed up here just last week. I can guess that he has just started dialysis, due to his chest cath, and seemingly minimal amount of experience with the procedure.
This poor man has been uncomfortable every treatment he has been here - visibly uncomfortable. Every few minutes he expresses his displeasure with being here, and tries to stand up to leave. To be clear, he’s not grumpy, or angry - just discontent with being here. I’m not sure he completely understands what’s going on here, or why he has to sit still for 4 hours. He’s obviously suffering either from some degree of senility, or dementia, as he seems to forget sometimes that he is hooked to the machine.

He tries to laugh with the techs and the staff, and when I asked a tech to give him some popcorn last week, he looked at me dead in the eye and told me I was “right on” in my assumption that he might like some too.
He’s either being treated like a 2 year old (last week miss squeaky-voice tech was talking to him like a toddler), or being neglected all together.
No family - not one person has come in to visit this man who almost certainly has stories to end all stories.

My question though is: why?
Why is he here?
Why would you be put in a place like this to waste away what little time you have left here? I would understand if his family was trying to maximize their time with him - but he is transported to and from here by ambulance (no family) and receives no - absolutely no - visitors.
It’s disgusting.
He obviously doesn’t want to be here, and obviously isn’t being heard.
What can someone like me do though? I’m in the same situation - bound and chained to the chair.

He’s on the other side of the room now (and last treatment) but if he ends up over here again I’m going to try and strike up a conversation with him and see if there’s something to be learned on my end.


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