My life with dialysis and kidney disease
Archive for October, 2005
Considering a Name Change
Oct 5th
I’m thinking about moving the site, as my personal site may soon be moving at a very different speed than what I’m trying to create with the blog and kidney related forums.
So I’m thinking about doing something new, and am opening my mind to suggestions for names.
Obviously the new name will be for the kidney oriented part of this site, and so I’m looking for something kidney related in the name.
While Tollidee has been great to me. For those who don’t know it’s two German words: Toll (meaning great), and Idee (meaning idea). Frankly though, too few get it, and end up getting confused when I try to tell them how to get here. I’m looking for something "easier", and memorable.
Some of you are fairly creative… so please let me know if you think of anything along these lines.
Bush and the Avian Flu
Oct 5th
So I’m watching TV yesterday morning, and I happen to see Mr. President giving a news conference.
Now I’m not much of one for politics, but I watched for a few minutes. <sarcasm> Much to my surprise </sarcasm> I would later find out that most of what the President said with regards to the Avian Flu would be taken out of context and spun around like a merry-go-round.
The news agencies started reporting that Bush’s plan for the avian flu was military controlled quarantine.
What?
Did you folks watch the same press conference I did?
Here’s a link to a transcription of the entire thing.
I will however include the avian flu section below:
Q Mr. President, you’ve been thinking a lot about pandemic flu and the risks in the United States if that should occur. I was wondering, Secretary Leavitt has said that first responders in the states and local governments are not prepared for something like that. To what extent are you concerned about that after Katrina and Rita? And is that one of the reasons you’re interested in the idea of using defense assets to respond to something as broad and long-lasting as a flu might be?
THE PRESIDENT: Yes. Thank you for the question. I am concerned about avian flu. I am concerned about what an avian flu outbreak could mean for the United States and the world. I am — I have thought through the scenarios of what an avian flu outbreak could mean. I tried to get a better handle on what the decision-making process would be by reading Mr. Barry’s book on the influenza outbreak in 1918. I would recommend it.
The policy decisions for a President in dealing with an avian flu outbreak are difficult. One example: If we had an outbreak somewhere in the United States, do we not then quarantine that part of the country, and how do you then enforce a quarantine? When — it’s one thing to shut down airplanes; it’s another thing to prevent people from coming in to get exposed to the avian flu. And who best to be able to effect a quarantine? One option is the use of a military that’s able to plan and move.
And so that’s why I put it on the table. I think it’s an important debate for Congress to have. I noticed the other day, evidently, some governors didn’t like it. I understand that. I was the commander-in-chief of the National Guard, and proudly so, and, frankly, I didn’t want the President telling me how to be the commander-in-chief of the Texas Guard. But Congress needs to take a look at circumstances that may need to vest the capacity of the President to move beyond that debate. And one such catastrophe, or one such challenge could be an avian flu outbreak.
Secondly — wait a minute, this is an important subject. Secondly, during my meetings at the United Nations, not only did I speak about it publicly, I spoke about it privately to as many leaders as I could find, about the need for there to be awareness, one, of the issue; and, two, reporting, rapid reporting to WHO, so that we can deal with a potential pandemic. The reporting needs to be not only on the birds that have fallen ill, but also on tracing the capacity of the virus to go from bird to person, to person. That’s when it gets dangerous, when it goes bird-person-person. And we need to know on a real-time basis as quickly as possible, the facts, so that the scientific community, the world scientific community can analyze the facts and begin to deal with it.
Obviously, the best way to deal with a pandemic is to isolate it and keep it isolated in the region in which it begins. As you know, there’s been a lot of reporting of different flocks that have fallen ill with the H5N1 virus. And we’ve also got some cases of the virus being transmitted to person, and we’re watching very carefully.
Thirdly, the development of a vaccine — I’ve spent time with Tony Fauci on the subject. Obviously, it would be helpful if we had a breakthrough in the capacity to develop a vaccine that would enable us to feel comfortable here at home that not only would first responders be able to be vaccinated, but as many Americans as possible, and people around the world. But, unfortunately, there is a — we’re just not that far down the manufacturing process. And there’s a spray, as you know, that can maybe help arrest the spread of the disease, which is in relatively limited supply.
So one of the issues is how do we encourage the manufacturing capacity of the country, and maybe the world, to be prepared to deal with the outbreak of a pandemic. In other words, can we surge enough production to be able to help deal with the issue?
I take this issue very seriously, and I appreciate you bringing it to our attention. The people of the country ought to rest assured that we’re doing everything we can: We’re watching it, we’re careful, we’re in communications with the world. I’m not predicting an outbreak; I’m just suggesting to you that we better be thinking about it. And we are. And we’re more than thinking about it; we’re trying to put plans in place, and one of the plans — back to where your original question came — was, if we need to take some significant action, how best to do so. And I think the President ought to have all options on the table to understand what the consequences are, but — all assets on the table — not options — assets on the table to be able to deal with something this significant.
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So where do all these people get the idea that he wants the military to take over in the event of an outbreak?
Indeed he mentions the military being involved in the process. He also makes it clear that he brings it up as a point to be debated — not his plan.
The specifics of his plan follow after that with the mention of producing vaccines, coordinating with other world leaders and the WHO, etc.
So why does the media take and run with something like this? It clearly isn’t objective reporting to take the above and glean from it only that the President wants to take away your personal freedoms by instituting Marshal Law should an outbreak of avian flu occur.
Are Americans really so far gone in their ability to reason, that they can’t objectively filter data anymore? Can nobody read the above transcript and see that, while the President may be wrong about many things, his approach to the aforementioned problem is at least very reasonable?
New Drug May Reverse Kidney Failure
Oct 4th
In a July 2003 WebMD article it was stated that a new drug had been found which posessed the ability to reverse scarring, specifically the scarring causing kidney failure.
The drug successfully reversed ESRD in labratory mice, reversing their kidney failure, and restoring renal function.
The drug: BMP-7 is used to heal severe bone fractures, but was found to also have the ability to reverse scarring.
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"When a body organ is injured, scar tissue forms. Normal cells turn into scar-causing cells. Kalluri’s team now reports that BMP-7 reverses this process. And when they gave the drug to mice with fatal kidney disease, it repaired severely damaged kidney cells.
"In effect, BMP-7 is decreasing the bad cells and converting them into good cells," Kalluri says."
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Wow… this has been floating around for over two years and nobody has picked up on this yet? 80,000 people on the UNOS list, and a multi-billion dollar dialysis industry … and nobody has told us about this?
Not surprising I guess.
What are the pros of this drug? What are the cons?
Surely there is a rational reason why we’re not all on this drug right now rather than sitting in our dialysis chairs. Why?
It amazes me what the media chooses to report, and what gets pushed to the back page.
Certainly Medicare would prefer to spend money on this treatment, which would reverse kidney failure, rather than to pay tens of thousands of dollars a year for each of us to survive on the dialysis machine.
Has anyone else heard anything about this drug? I’d really like to know.
I’m assuming there’s a logical reason we haven’t all heard about this in the news … anyone care to fill me in?
PubSub
Oct 3rd
So what news aggregators do you all use? How do you like to receive your favorite RSS, Atom, and podcast feeds?
I recently found the PubSub service. It’s a free service that tracks over 16 million sources. So basically you can setup some search criteria, and it searches for blogs and feeds matching that criteria … 24 hours a day. Visit your "stack" whenever you want, and constantly be apprised of new material that interests you.
Enjoy.
What’s New at the Boulder Clinic
Oct 1st
I’ll tell you what’s new…
One of our long time patients got his transplant yesterday!
CONGRATULATIONS!
Ethan has been dialyzing with me at the Boulder clinic for quite awhile now. He’s been listed forever, and has been patiently counting the days.
About two months ago he "got the call", only to find out several hours later that one of the three people called was a better match. He was pretty down after that false alarm, but I told him then "you’ll have it within three months Ethan". I was just trying to be supportive, who knew I’d be right!
Anyway, congratulations to Ethan, here’s wishing you a quick recovery, and a long long time before we have to see each other again.