My life with dialysis and kidney disease
Archive for October, 2005
Update From Ethan
Oct 14th
As I mentioned last week sometime, one of the patients from our clinic received his transplant last week. He came in to see us today, and he looked great! He was only in the Hospital for about 4 days, and was up and walking the day after the surgery (the surgery took place late at night). After a minor "blip" or two, he’s home, and beginning his new life with renal function.
We hope Ethan remains healthy, and hope not to see him back in the dialysis clinic for a long long time!
Slow Day at Dialysis
Oct 12th
Thankfully… slow is always better than active in this world.
Things are running smoothly, and my BP hasn’t crashed yet, so I’m still speaking coherently.
I was just stumbling around and found this cool Flash movie about the future of the media. Interesting I guess, but at a few points I couldn’t tell if it was a joke, or really supposed to be taken seriously. I think I laughed out loud when they mentioned "GoogleZon", but it wasn’t until the end that I realized they meant every word of it … as a fictional archive of past events programmed in the future of course.
Have a look at Epic 2014, and see what $100,000 spent on college tuition is getting these days. To Robin Sloan the creator, I mean that respectfully of course. You’re obviously a smart gentleman (I’ve never spoken to anyone in front of Cheney, much less my entire graduating class), I just think it’s funny that people like you and me who were probably made fun of for enjoying computers as youngsters, are now using them to shape the world around us.
Well… I’m not shaping the world in any way … I need to be clear about that.
Kudos to you, for a fun and sometimes eerie look at our lives in Google-ternity.
One or two of you will get a kick out of this, for completely different reasons. Feel free to comment after viewing.
Tech Report: LiteStep
Oct 12th
Lite what?
LiteStep … it’s a shell replacement. It’s been around quite awhile and has gained some popularity over the years. For some unkown reason I have just found it.
As an aside, I think this is what I love about technology. It is SO broad, that I am constantly finding things I haven’t found before.
Anyway, back to LiteStep. It basically takes over and allows you to change how windows looks and interacts with you.
Installing LiteStep allows one to download and install many different themes and skins that significantly change how windows looks and acts. For example, I found one theme called hysterica which aligns everything in your taskbar vertically at the top-left of the screen. It removes ALL icons from your desktop (I LOVE clean themes), and even gets rid of the windows toolbar on the bottom of the screen.
A right click anywhere on the desktop gives you quick, intuitive access to all your programs and applications, while the theme itself displays lots of useful information about your computer on the desktop (% of CPU usage, available memory, etc.). There’s even a command line right on the desktop! This is perfect for those of you constantly hitting windows-key, followed by "R", followed by "application-name".
I am enjoying it immensely so far, but wouldn’t recommend it for the faint of heart. I’ve had some issues trying to get different themes running properly, and while some are much much better than the traditional Windoze interface, some are not well thought out, and probably should be avoided.
The plus is, you can always easily switch back to your Windows Explorer shell, and have things the way you like them (none of this affects the operating system in terms of how or where things are stored — just the appearance).
Sharing Experiences
Oct 12th
Monday morning I did my first ever dialysis related interview.
I first need to share why this is a (not so) big deal. When I first received my transplant from my Mother, the local news stations wanted to hear about it. We had scheduled an interview with a camera crew, and I was going to be featured on the 10:00 news. Not that I was all that excited in my steroid-induced haze … but nonetheless I was happy that someone wanted to hear our neat story, and share it with others. Well, the day of the interview came, and the station called to let us know the interview was off … basically because something more interesting came up. They didn’t even want to reschedule, it was just cancelled. Well, of course I thought that was pretty lame, so when I got the chance to relate my story for an upcoming nephrology publication I was pretty excited. For fear of my second chance at fame being "cancelled" I’m hesitant to share too much about it. Ok, not really, it’s actually not too big of a deal, but I am excited at the possibility of sharing my experiences with others, and thereby possibly help someone through a similar situation. That was my original intent with this blog and my forums, but few have arrived to enjoy it with me. I basically did a short interview explaining a situation at the local clinic in which I was able to change something I didn’t like through open communication with the staff and administration. Please contact me if you’re having issues at your clinic, and would like information on the best way to approach this, and who you should talk to. I’m sure some of you are already very aware of who you need to talk to in order to get things done, but if you’re new, or unsure, please let me know – I’d be happy to share whatever information I can.
The Big Colorado Snow Storm
Oct 12th
I’m watching CNN while at dialysis on Monday, and they’re telling me through the T.V. that I’m getting 20 inches of snow. I thought that was weird, not having seen a single flake. Sure it was raining, over night and all day (that’s a big deal in CO), but not a flake of snow here. Now, I shouldn’t make it seem as though the whole area didn’t get any snow, because most of the Denver Metro area did. For some reason though, this little pocket around Boulder got zilch.
Of course with an early or late snow, comes all the normal problems. Trees still have leaves and can’t hold the weight of the heavy snow. It’s quite odd to walk out on a quiet morning in early or late winter, and hear popping all over the neighborhood as huge limbs of tress just break off. Every Colorado kid has at some point in their life had to wake up really early and go outside with a broom and knock the snow off of the limbs by tapping them. Of course the kids do this because they can
a) fit under the shorter trees, and
b) adults don’t want to have huge piles of snow falling on their heads.
This is why every kid needs a big dog for a friend. There’s nothing more fun than going out to shovel or clear snow with a large dog hopping around with you. My German Shepherd "Attila" absolutely loves the snow. He likes it most in fact, in the form of a snow ball hurtling through space directly at his face. He jumps straight into it, mouth wide open, in hopes I think of being able to swallow it whole.
Let this be the official welcome of potentially snowy weather. I’m ready to play in the snow, and thankfully here while it gets snowy, it doesn’t typically get too dark or cold during the day.
I have to say though, it’s hard keeping my fistula arm warm when playing in the snow! With the blood supply diverted through the fistula, less makes it to the hand, and as a result I frequently have a very cold, or numb hand when out in the cold. Nothing a hand warmer can’t take care of though.
*note* I should also mention for those who may not know – be careful when bundling up if you have a graft or fistula. You never want to constrict it in any way. Don’t put on cloves or jackets that are too tight around the wrist or arm.
Enjoy your play time in the snow!