About Tollidee
Tollidee – A Community
meaning “great”
and idee, meaning “idea”.
The purpose of this site is two fold. First is to provide a face for my profession as a web designer and RIA developer.
Second, is to provide an online community to educate,
and support kidney patients and their family members.
Here you’ll find my personal blog where I talk about various aspects of web standards, best practices, coding, and design – as well as opinions and thoughts on healthcare, life with chronic illness, and my own personal journey through two kidney transplants, 8 years of dialysis, and open heart surgery.
What Is ESRD?
is really just a fancy way of saying “kidney failure”.
This site is meant to be not only a way for me to share my life, but also
a place for people to share, and relate their own experiences with chronic
kidney illness.
I hope that this will become a community dedicated to patient advocacy,
and awareness. Hopefully through sharing our own experiences with each
other, we can create awareness, and support for patients, their families,
and their friends.
Please enjoy your stay here, and feel free to chime in with any questions, comments, or suggestions.
I just found your site, I am a nocturnal home hemo dialysis patient of 4 and a bit years. I am trying to find places that I can read and be a part of. Thanks.
James,
Thanks for stopping by and commenting. You’re welcome to comment on anything I write – I actually prefer this be a place of exchange rather than my personal soapbox.
Our forums are also a great place to interact with other ESRD patients.
Again, please continue to pop by and comment whenever you’d like.
I need your help: Send me the dialysis bag pull tabs to “recycle and recycle life”
My husband designed a CKD bracelet using the recycled pull tabs from the used dialysis bags. (You know, those yellow, green, red and purple tabs that are currently thrown away – just like the ones in the picture at http://www.ouiworks.com/contact_us0.aspx .)
We are recycling this product to produce a teaching aid designed to help educate the community about Chronic Kidney Disease. (Go to http://www.ouiworks.com/ckd_bangle_bracelet0.aspx to read the CKD Story). Currently all of the PD staff at my clinic are wearing, own or have requested one. And the PD nurses are saving the in-clinic tabs.
If you are on peritoneal dialysis, would you collect your used rings and get them to me. For any size (small, medium,large) USPS Priority Mail box – (they are free and the mail carrier will deliver them at no charge) – that you collect or mail to: Glenda Roberts 17115 163rd. Ave NE Woodinville, Washington 98072 U.S.A., I will send them a FREE bracelet, a discount coupons or whatever works for you. You can wear the bracelet or give it to a friend. (See the various designs at
http://www.ouiworks.org/free_trial0.aspx.) Please share this with friends, associates or other forums. Thanks in advance.
Glenda – I’m sorry, but I’ve already gotten rid of all of my hemodialysis supplies. I was transplanted for the second time in March, and have since removed all of the NxStage supplies from the house (thankfully). Best of luck finding these pull-tabs though. We used the PureFlow cabinet mostly, so we didn’t have many of these pull-tabs, but the bracelet sounds like a great idea to increase CKD and ESRD awareness.
Congratulations. I hope all is well. I was transplanted in December, 2010.